Aug 20, 2014|
Kevin was diagnosed with acute myeloid leukemia in December of 2005. After 6 months of chemotherapy he went into remission for about 1 year. Dr. Joseph Antin determined Kevin needed a stem cell transplant. Kevin is still under treatment to deal with the after effects of the transplant.
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-- doing a great job and try to make that happen want to thank our newest guests for coming in and joining us for a few moments here before we get the 1 o'clock -- with one point 56 million. On the border right now on funds raised. I Kevin Simmons 49 year old acute might Lloyd leukemia patients. That's a blood cancers from Portland Maine what are my favorite places to visit a -- Portland fantastic. And a doctor Joseph Anthony's one of the best in the world. When it comes to us stem cell transplantation. Program development and I've heard so many good things about him. And what he's been doing the Dana Farber cancers two gentlemen thanks a lot for coming on I'll start with you. Personal Kevin tell you familiar path and your journey and and and why you're here and how doctor and to help you along the way. Well as originally diagnosed. About ten years ago. Through the emergency room in Portland and I didn't -- to view. Remission on him out of remission and had to. Have a heart transplant was introduced to. Doctor Hansen and I had ample transplants. To seven years in December. And it was soup there's complications with as well yeah and expect Eagles moved many complications. I got today aids disease. Beauty. Which is in your liver and kidneys shut down on resident gospel for extended period time. 03 months but due to an experimental rocket. To cure the problem in and I'm here today. So a good doctor -- and can you just. Current talk about you know what you do cause -- only thing you do is this the stem cell transplantation. -- doing that you only work with patients. Who need this what goes into it. And how helpful how useful is the services that you provide. Well services I provide it. I think you could see standing right for you. People like Kevin. In the pre transplant here really did not have an opportunity to be cured of their disease and and I think we can say with her degree of confidence that that he is secured and that's really the day spectacular thing. You know in in in the adult. Medicine people with malignancy is the ability to take somebody who has a recurrence. And then -- translate that into complete eradication of leukemia -- long healthy life. Israel what we're looking for example we've we can achieve a certain proportion of people. In in the value of of this type of fund raiser courses that. Drugs experimental drugs for suspect Kevin received. Require. A huge amount of infrastructure. For us to be able to accomplish that -- to provide that for people who need them and this is where. The fundraisers really critically important terms of allowing us to move to the next step for the next person. That we just keep hearing that over and over again here experimental trials so new. New ways new thing to me how. We it was a five years ago there was a ten years ago but how quick it really kind of come on here. Well when I started in this business was -- longer than ten years ago if you were 35 years old that was the upper limit -- which we were doing transplantation. We're now doing them and keep -- people who are seventy to 75 years old. And to have -- who really is entirely based on the willingness of people who have these diseases to participate in clinical trials you can't just go from 35 to 75 because you want to. It's a step wise process where you're constantly. Trying to innovate and and -- the field forward. And that's for the clinical trial process is all about developing new drugs developing new supportive measures so that. People who have underlying medical problems for instance if you had some. Heart disease or lung disease in a previous theory were disqualified for transportation we are able to do those things deserve our support of carriers that are. Can understand your on your business and means -- writes I do I do irony two hotels open no -- mean. Two and I was diagnose they had to take an extended period of time off. And then of course after the transplant I had to take. Over Europe has yet to -- in isolation. For here you let me right to my next point active -- face courier going this that. Was bothered you know land once the war to not take -- your own business and because you had to be sidelined. And getting help in recovering but I know that something that the Dana Farber Cancer Institute likes to. Help people -- is. Maintain their health beyond the trial maintain their health beyond that transplant or what have you but at the same time coaching youth through. Your recovery threat. Correct me the support from from you know back to answer the staff and the nurses. And the the integrative therapies and things really really really keep -- gallon. And being a workaholic it's tough to shut down the network Alec is is really tough to sit -- -- -- Lou we've talked a lot of kids. Right were dealing with and it's amazing words the commodity amounts mean a ten year old walk through Q there at the teaching adults how to live life. You a little bit older something like this happens. How does that change you a quote where you before that it didn't really change your local we always got appreciate each and every day. No I I IE was a workaholic and he said it and still am but with -- within reason. It was all the votes. Where I could go how likely do that. You know today. And speaking in many other people that have had transplants. You get an awakening. -- -- Enjoy it give back what you can get back to be active. So that workaholic give you slowed down a little bitter I I Abby have enough votes I decided I I I have slowed down I I do take some additional time off. In and keep things. Prospective car so we had a couple kids on here who had a bone marrow transplant from the donors came from Germany. You're fortunate enough to have find out that your brother had a healthy stem cells and it was a match can you kind of how does that work to me as it does everybody get tested it and what that conversation like. When I was originally diagnosed. In the -- that your use of the Kenya right. Satin and said leukemia. What is leukemia -- Milwaukee -- are just couldn't didn't didn't know what it was or wasn't comes. I'm so during the process of when the transplant needed to happen of course if they let you know the gonna go out -- and look for donors but your field is tested. On at the same time. And so was it and it was very stressful. On him when we did find out the my brother is a match it was it was better. Though. When I was introduced to transplant -- back to -- colleges in Portland. On this -- system for. -- -- fortunately it passed today. -- -- is is there is or is there any danger with a you know what -- donor. When it comes of the stem cell how does that is it just -- former -- and you know how does that work doctorate and -- to the door for don't know how to how does that work. Well there's there's two ways that we can collect stem cells from adult donors want isn't directly. Collect them from the bone from the bone marrow from can help us this is done in the operating room pitching gets anesthesia we. We just put needles into the pelvis and suck out some liquid component well. So it's an operating room procedure people are sort for a few days afterwards but it's -- most people really don't printed it that. And the other one is what's called peripheral blood stem cells and there we can we give donor. -- hormone that causes themselves to be released from American to the circulation. And we took him up to a machine the same machine that you reduced efforts to collect platelets -- project usually use. And we can -- the stem -- there and that's been pouring. And. No I never heard before -- I mean like he's talking about you know walk in the park Kraft but it only became that way because the science has come so far and it wasn't my script and I wanna when he when I hear. Bone marrow transplant when -- hear you know stem cell transplant I'm thinking you know Star Trek -- type stuff like real. You know invasive type surgeries and it. -- that Adams and it didn't seem as invasive as light or comfortable as I thought it would be. Well at least ten years those same process. Yes when that when I say that collections for his boring for the wrist for the donor because they just have to lie still for about 46 hours -- watch television or read a book or do nothing. This is nothing much is going on. The operating room of course -- lead to answer -- are particularly -- to do that. The other person is is basically the senators themselves come from the moment we collect them one of a couple ways. We haven't we haven't developed the Star Trek transporter no transport to directly without breaking -- Not yet we have all -- now that we have the same on the -- -- but there is as and that the beam up ability -- market isn't as common as maybe some might think having just as simple as a brother being a match what was just more of the lucky thing. But the lucky -- board that it the likelihood of matching any given siblings get one brother and -- percent. -- a big family then it's 5% pepper. Brothers sister and that increases the old -- on match in the United States where the average -- ours is -- world laughs. We front -- -- about -- quarter people so you're talking about the -- children who got them from Germany and from unrelated donor program. Where where volunteers join the registry are over 22 millions people who have volunteered to donate themselves. From around the world we -- Japan Singapore Germany. States that many places. Word so that that increases the likelihood of it rather substantially. In the last few years we have. Further enhance their ability to use mismatched orders in the past you really had to be a good match but the transparently what can be successful. Part of the research that we've done is the capacity to two identified or who are fully patched and -- get the same quality. That that was something that took. Decades really. Really coming together right now beautifully. As we go to I'm certainly did these -- up against -- here house. Gonna ask very quickly forcing anybody who is this your brother behind -- I don't know this is my my mom in the partnered okay good just gives you thank you for coming out as well enough. Your brother. 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