Aug 19, 2014|
Barry was diagnosed with stage 3b lung cancer in 2012. His treatment included: chemo, radiation (initially did chemo, then radiation, then back to chemo, other standard drugs) and now he is on a clinical trial and he is currently receiving treatment. He lives in Boston and has two grown daughters. Dr. Christopher Lathan is an oncologist who specialized in cancers of the chest, including lung cancer. He is committed to providing access to cancer care and education to Boston communities. He is the director of Dana-Farber's Cancer Care Equity Program, which serves as a bridge between research and outreach efforts to address cancer disparities at Dana-Farber.
Transcript - will not be 100% accurate
-- Jimmy's team it and sign up for a monthly gift of forty dollars and sixty cents celebrating the batting average of Ted Williams a lifelong friend of the Jimmy Fund. A gift of forty dollars and sixty cents it for a six. A month could provide transportation assistance such as subsidized parking and taxi vouchers to give patients. Better access to care please help us reach our goal of 61. Monthly donors. And making -- now. Three and images of the Jimmy Fund before we took to the air guys to invent the Maloney Christian Fauria middays with an FB. Drove belong where on the part today's -- Ted Williams statue symbolizing the Jimmy Fund. And to know the depth of his connection to this charity. Just kind of refreshing my mind on it literally he comes back from Korea. Lands they wanna do. A parade in his honor celebrations honor. He says no and less the celebration is 8000 dollar plate. Dinner to raise money for the Jimmy Fund. He said okay we can make it happen and that's the only time we a lot of self to be honored coming back from his second war. So that he can raise money for the Jimmy Fund so that connection with Ted Williams is very real as it is the Boston Red Sox. -- you I don't know what else is real big shout outs to three people right are going to be doing this throughout the show. Scully special donors there is -- we should call don't you had a big dollar donors so big shot goes to Stephen McCullough 15100 bucks for Melbourne Florida. Today. Another 15100 bucks from Beverly wind lastly -- 2500 bucks Newcastle New Hampshire thank you very much much appreciated. And Jule Phillips live TV but in room that last name viewers that 15100 bucks from hope Rhode Island so -- very much for. For too -- also thought Stevens and Beverly for your appeared gets in your donations. Also want to thank the folks who donated from Nazi here Wisconsin. No -- Missouri we have all the state and Alabama or China girl Emma. Although one extra my contribution kind of Pennsylvania Philadelphia, Pennsylvania California we drew out of the bank account there was still back in Pittsburgh California are you like I don't know do we have I don't I don't know I've seen out and that's never gonna happen makes a couple. Polonia represented here Southern California -- -- -- northern California. It's only a note. Tell us kind of an easy said way to bring on our next guest Barry Nelson who has a lung cancer patient from Boston and doctor Christopher Leighton from Dana Farber cancer institute and doctor -- Is someone who helps to manage the Roxbury satellite ranch for DC DF CI and I say that because we're just talking about people getting transportation assistance to Dana Farber. It's hard sometimes for people to come into Boston to get treatment. And one of the things that has been -- real point of emphasis in recent years for the institute is to get out into various neighborhoods around Boston so it's easier access for potential patients to get there and get care. And doctor later on hand it over do you sort of take it from there and and for instance would be seen in Roxbury along those regards. As soon we have this collaboration with Whittier street which -- -- community health center ratepayers sent Roxbury and what are the things that was really important to us is to really make sure that acts patients who are in the community have access is incredible. Facility as CEO dateline. -- the department -- find the level of care and the things that we're able to deal especially. And we want to make sure that members are members of the community have access to it. And certainly we eat with their community partners and working very very hard the try to make sure one would present there into that these issues of transportation and sometimes people just over Huntington avenue. And the idea of coming to Dana Farber to Jimmy Fund clinic seems like so far away we really want to narrow those gaps and show that we can bring policy credible. Incredible work clinical trial work on the supportive care that we have at -- to be -- clinic at the Dana Farber writes in the community -- Now Barry you you were diagnosed. With stage three B -- get terribly in 201261. Years old take me back. -- a couple of years ago and what you were feeling what led -- at diagnosis. Well I was feeling well and just so happened Wendy got up and I had. Soreness -- -- through sorry in my neck of my left hand side from what to feed my primary position and it's a well you know let's monitor for a week and if it goes away so after week it had gone away -- -- the next day -- -- again. So the next day when I went to see my partner positions that need to get -- victory and that's what in the process start to really discover was going on and a week later I was diagnosed with the Steve's freebies like cancer. So and since then bury its I mean here's what there's little assessment chemo radiation initially did you know then radiation. Then backed her then back to Kimmo and other standard. You know lung cancer drugs. Emotionally it. Hot what's the difference from dealing with the chemo and radiation is it. Is it black and why is it does -- gray area there is it how does it affect you personally. North into question. So when I think about the radiation and the reason. For me. Because of where it's located my lungs basically had to treat this match. And they would have to secure means to the -- each day could go for like eight weeks to get the treatment. So that was a little overwhelming for me because. You know for you have to be accurate to something for them to treat you. Reach him you know there orange tie down to ours ours aren't like them is -- your upper body won't be for me with my upper body. Influences you know -- secured -- this man then you get the treatment. That was the most difficult part about that I mean I did get fatigued from that. And in kibo. And I have had several different -- the -- And all responded differently at different -- -- -- but at the river there were times and you know I would be in bid for like two week. And generally one week that would feel better it back to my. Routine that by the time I lost my equilibrium I couldn't really walk the stand and move about in 00. But a fantastic now. Earlier smoker. I was a smoker yes but that's of an athlete maybe has questions for you because people just think of lung cancer and I think smokers. But that's not that's not the case isn't that just now 15% of people of one cancers are nonsmokers never -- And the majority people who were smokers that quit easily some time and in one year fifteen years before. So this is not a disease lung cancers that these disease as a last statement. The first thing people -- like -- to patients is did you smoke and and that's not something that we ask people with other cancers we don't ask people who have colon cancer coming Hamburg issue you know it's it's a very specific thing and I -- affects. The patient population since I only treat patients who have the drastic cancers certainly this is near and -- And you know they're being very modest about his activity level this is a guy who was exercising our time who is really active and was active throughout came out there even when he wasn't feeling well. And but even that that that feeling he took its beat them more that there's a feeling that comes to the diagnosis that's more than just that he can on the side effects is there's something outs and isolation and other things which he's able to overcome but it. It's it's there. You know before we went on to before the break urgent. Talking to -- believe about what you may even men and believe so tell me what is it that he does for you that's makes him so special. Well you know I when I first got diagnosed I came to doctor -- for my second opinion. And but I was being treated somewhere else. What he really -- for me was he really explain to me what I could expect McCain to. You know how might help to go and how it might need to be managed. He really fit real expectations that you know -- if the possibility that my health -- really -- -- And I'm really need to look at how I might need to change my life. So at that point you know I sold my business I sold my house I moved to a place where I felt it would be able to manage my life and yes I have resources that people built to meet but I don't wanna be Bertans inning so I really think that the heart in -- it's -- really life taking decisions. The blessing is that I have it might help hasn't deteriorated to that. But he was very real with me and that's what I appreciate so much about it you know. So are you so when you when you when when you sold your house and soldier business. Mean that was an -- that was a few but giving up mentality right it was more of a OK I need to be able to. Once I do you know break this in and beat this I'm able to survive for long period of time. -- financial exactly. The boat -- you tugboat very being modest how important is that the frame of mind. Physically going out in working out and and remaining strong physically and mentally as are some of the patients you've seen. Yeah I think what I think it's been amazing about scary is that he has and you can see it there's energy there's a caring and as -- wants to and that pervades and you know. This idea staying healthy enough to stay healthy physically but singing gauge the things that are important to you whether it's you know your spiritual life whether it's here. Your personal work whatever it is it drives you. Keeping that connection people around you and done. You know over the timing and it's been a couple years that we've been working to -- we've got to know each other. Very very well personally and I think anybody knows that there is seen this light this kind of warmth. And he works very hard with our McCain's support group he really helps a lot of the other patients he goes around he's able to talk to people about this and this ballots he's talking about the you know really thinking about your life. When -- cancer diagnosis strikes you thinking about as a threat -- your life but not giving up hope. But also you can do this parallel you can kind of look indeed make practical decisions about your life he can focus on yourself so you could feel better. And meanwhile we've been able to do some really incredible things he's been great about trying all these different. Innovative clinical trials is different things along the way which have been very very the very effective. And to conclude doctor -- final moments here it's important point out the money that were racing today is the general fund of the Jimmy Fund so it can be allocated no way to best push forward whatever the most important needs of the moment arsenal for instance. If the Jimmy Fund wanted to try to make another clinic happen another part of New England haven't gotten to yet it's further proof that you don't have. Your five like our last -- 61 like Mary you're black you're white -- mixed race Hispanic. There's more to it in just somebody getting on the team coming up from the back today. That the Dana Farber cancer institute and Jimmy Fund reaches throughout New England all parts of population all races all ages etc. Absolutely that's an epic that's the key players he's on it and you know there right now which people talk about a lot that your other folks we'll talk about the -- He's actually done tremendously well I want under emphasized that that's really he's had a great response to limited side effects cycling he's exercising. It is like back into this sort you know the money that we raise in the situation really allowed -- -- Thanks so much for joining us all these great -- and they -- please call 877731234. Or go online to Jimmy Fund dot org and join Jimmy's team monthly giving program today. -- reach our goal of 61 new monthly donors by 2 PM. From -- important clinical trials to supporting the Jimmy Fund clinic every gift makes a difference in the lives of adults and children. Battling cancer at Dana Farber -- -- -- at the other Maloney Christian or -- invents this WEEI. Message Jimmy Fund radio telethon. Live from Fenway Park presented by Art -- insurance foundation.