Aug 22, 2012|
After being diagnosed with Hodgkin’s disease in 1970, Richard Conoboy was diagnosed with colon cancer in 2005 and now talks about his long journey living with the disease with Ordway and Holley. Along with Conoboy, Rich Boyakjian, clinical director of the adult survivorshop program at Dana-Farber, discusses the long-term care necessary for adults looking to manage their lifestyles with the disease and make sure their lasting medical needs are addressed.
Transcript - will not be 100% accurate
Let's meet Deb Richard convoy -- great to meet -- Clinton why you don't tend to burrow of Clinton this is Rich Boy we are junk that they get that right to know damage that's right god that deals and he's he's a clinical director adult. Supervision program is that what it is survivorship program got that I just I should explain what you do. Well I built primarily on most of my job is seeing patients. That are completed treatment and down. Need follow up care basically depending on what -- you know what they treated war. -- you know I'll follow them for their disease surveillance but also. On days there are some of my patience and a lot of them have a lot of long term risks and so it's made in managing their risk because. We do so well with survivors now that more and more people being cured. But long term survivors sometimes have long term toxicities and you know and that's where -- that's how I met -- Every justice geragos you go way back -- this disease is no way way way back we know now they're -- it is -- are 882 time survivor. Yeah cancer may tell us about for the first time you were diagnosed in the second time your time on Mike we're gonna turn of the century for grown the first time back in 97 there was just fifteen years old. Just starting high school PCI over Dorchester. And I was doing well I dropped some windows running track. And kept dropping -- into the kept dropping weight and it took a little while some tests. My mother and father dragged me to the doctors when Saturday morning. Because they didn't think losing weight was always great at that point. And that afternoon I was in the hospital and a couple days after that diagnosed with hodgkin's disease. Then. 35 years later it's 35 years later. I never thought it could happen to me again. And it's literally turned my back on and walked away from all the help fit to you can pick up period to the Dana Farber the other hospitals. Further down Brookline avenue. And went in for routine colonoscopy and woke up to find out that there was no problem. So. Ask for a second opinion and fans for third and he has finally have the surgery done. And but do you walked away from that. Still with the -- a big puzzle in my mind to know why. And why some was gonna be answers here in my wife and -- to backtrack and figure out well. Who's going to be somebody else did he has a road map and understands all this stuff. And another doctor -- recommended that do we talked to rich -- urgent. I think Dana Farber cancer institute. And my god we found again discuss the road map and he's building a program around that. So it just to kind of thing that. At this point. We're really looking for. Takes a big responsibility off the bus. Because we don't know we're doing I mean you just. Sort of go to doctors and then do wait for something to world -- -- some directions or prescription or something and you know really looking that far down the road. So in this case. And dispositions -- -- which coordinates for us. Really do -- road map to see it before. -- lot of experience with it. They know what to look for the no wind to look for it and I can't tell you kind of peace of mind it brings to -- knowing this somebody's here to help. You know we're all thankful for the Dana Farber Cancer Institute -- we talked to many people. They say it's great to have. A support team the air and a support team among family and friends now for you. That's a little different tell people how many siblings. You have no I don't think that's fair -- -- I'm the oldest of twelve. So run when you so I can support networks have got to a baseball team and she got to go to basketball teams and the only a couple of coaches in their oldest of twelve sites imagine like fights for the bathroom. Of a big big dinnertime must -- an interest thing. It was always interest in really ships. If when I first brought my wife home to meet my family she got deep the first shift. So when she knew she was specialist at a point at -- kids' table and my challenge tonight is it okay this kind of what is right -- but she said the first shift. My kid brother stood behind -- kept tapping on the shoulder its class up out there and I felt right that are you done yet new music and my place. Original idea how do you formulate these maps. I don't know what to do well as as -- said we have run you know these world renowned physicians are ready and and they have a lot of this information already a lot of its. Coordinating. What's going on and I think. In partridge my boss was on now I yesterday and really did a good job well our goal is to try and make sure we have road maps to steal -- word. For every one -- you know that there is stay on standard that we have for people that they've done with treatment and. Mean it making sure they get the care that they need and that's been you know that that's a passion of mine and a ten and has really been the person that's. Moved it forward in the last GM -- more so than anyone I've ever seen it's been not. You know and and my history goes back is sound. I was patient as well as the Dana Farber -- word -- and you know and I was kind of like a rink -- where. You know I never went away just kind of -- on and they hired me and stuff like. It's been amazing working with you know physicians like doctor LEA and every one that kind of took care of me as well but. It was good care I body Dana Farber from the nurses in the positions then I changed in morning to that. The -- is a road map and we're hearing more and more of this from doctors the last couple years years ago. He was the C word it was cancer was one disease then we found out there were a lot of different types of cancer what we're finding out now from the doctors. Is these individual cancers. Act differently in different bodies so it's a matter of turning switches on churning switches off him I would think can follow up care. You're dealing with the same thing how it affects Richard Neer may affect somebody else a different way these -- -- exactly -- That you know we we have you know we have kind of poorly designed map not GPS kitten when it comes to like. The long term follow up stuff and and what people need but. You're right that the more and more treatment involves the more we have to look at long term for people and. Nobody that's what's so great and you know that's why we need the funding you know they're all these children out there that. Mike Richards was fifteen. And now how many years later he still needs the care and it it was a result of his prior treatment that he developed the second. And you know it is -- you've had these kids on and then there inspirational and there you know on. When I was treated. -- you know what was an inspiration for me was a girl lot of Children's Hospital. Carried -- Hamas so that was. Don't you didn't leave the hospital for almost a year after she was treated. And I get to take care of her as a nurse and when I get diagnosed I really thought well I've got nothing to complain about I'd get a little girl here that. Com you know dealt with all of this in the first years -- life which you know I -- really having to bitch about. You know and and Richards kind of the same way -- kind of systematic guy when we need to do and let's make sure. We've got a plan to address it in and that's kind of our goal and survivors of this. To empower the patient and can do the research and that's where the funding is so important to question it saved my life -- no. Questioned both survivors so you a couple of those times. Friends first finish fifteen in here you are west 57 -- good -- 57 you could have been an accountant has endured. Great photo and you do and you don't gonna -- a just -- adjustment. Numbers are not my you know the structure and not there -- -- how this is not a way trouble we have job almost without -- the governor -- so I it's great beaten both of you guys thank you went down my congratulations Paul thank you thank you thank you guys can thank you are all you do.